Living with Alzheimer’s: A Powerful Documentary by a Courageous NI Woman
A Northern Ireland woman, Allison Batchelor from Dundonald, who was diagnosed with Alzheimer’s Disease over seven years ago has played a crucial role in producing a powerful documentary that sheds light on what it is like to live with the disease. Her journey with Alzheimer’s began in April 2017 when she received the devastating diagnosis that not only impacted her but also her family. In a conversation with Belfast Live, the mum-of-two shared how the news initially “floored her,” leaving her feeling as though her life was over. However, Allison’s story is one of resilience and hope as she emphasizes, “you definitely can live with the right support. There is hope.”
The documentary, titled ‘Hear Our Voice,’ was recently launched at Stormont and serves as a poignant portrayal of the myths and misconceptions surrounding dementia, as well as the harsh realities faced by those living with the disease. With statistics indicating that one in two individuals will be affected by dementia either through diagnosis or caregiving, it has become one of the most pressing challenges in society today. The Northern Ireland Audit of Dementia Care (2015) highlights the growing prevalence of dementia diagnoses, with projections estimating a tripling of the number of people living with the condition in Northern Ireland by 2051, reaching approximately 60,000 individuals.
Developed in collaboration with the South Eastern Health and Social Care Trust and Dementia NI, ‘Hear Our Voice’ aims to provide essential insights for Health and Social Care professionals, offering a deeper understanding of what it means to live with dementia and advocating for a more compassionate and informed approach to care. Allison Batchelor expressed her pride in being part of the co-production project, emphasizing the importance of sharing experiences to create a more inclusive narrative around dementia. She hopes that the documentary will challenge stereotypes and misconceptions about the disease, offering practical tips for caregivers and healthcare staff to enhance the quality of life for individuals living with dementia.
At the launch of the documentary, Allison Batchelor and fellow members of Dementia NI came together to share their stories, highlighting the significance of giving a voice to those affected by dementia. South Eastern Trust Deputy Chief Executive, David Robinson, commended the courage of the individuals who shared their experiences, emphasizing the importance of active listening. He underscored the impact of ‘Hear Our Voice’ in raising awareness and understanding of dementia, thereby equipping staff with the necessary tools to address the challenges posed by the disease. The initiative is seen as a vital step in meeting the evolving needs of Northern Ireland’s population and ensuring that individuals living with dementia receive optimal care and support.
Fiona Rooney, the Service Improvement Lead for Dementia in the South Eastern Trust, emphasized the power of lived experiences in shaping attitudes and practices towards dementia care. She highlighted the need for healthcare professionals to listen to the voices of those living with dementia, dispelling common assumptions and fostering a more person-centered approach to treatment and support. Through the documentary ‘Hear Our Voice,’ individuals affected by dementia have the opportunity to articulate their preferences and needs, creating a platform for mutual understanding and respect between caregivers and patients.
Subheadings:
1. The Impact of ‘Hear Our Voice’: Breaking Down Stigma and Misconceptions
2. Addressing the Growing Prevalence of Dementia in Northern Ireland
3. Empowering Voices: The Importance of Listening in Dementia Care
As the documentary ‘Hear Our Voice’ continues to resonate with audiences and healthcare professionals alike, it serves as a catalyst for meaningful change in the perception and treatment of dementia. By amplifying the voices of those affected by the disease, the film not only educates but also inspires compassion and empathy in caregiving practices. Through Allison Batchelor’s journey and the collective narratives shared in the documentary, a new chapter in dementia care is being written—one that prioritizes understanding, respect, and dignity for all individuals living with Alzheimer’s and related conditions.